I’m Moving- Here’s How to Keep in Touch!

Not around the world to somewhere hot and sunny as I might dream. This weekend I will be making the big move to WordPress.org. I will miss the family here at wordpress.com but as I am now planning to make my living from helping others and teaching yoga I’m going to be needing a bit more flexibility with my blog and website. I hope you will all add me to your RSS or Twitter/Facebook/Instagram feeds so we can keep in touch! I am exporting my RSS feed from WordPress.com so I won’t miss any of you ;). Here’s how you will be able to find me:

 

http://www.arogayoga.com  (coming soon)

twitter.com/arogayoga

facebook.com/arogayoga

Instagram: arogayoga

 

I will write again soon from my new blog! So long WordPress.com!

xo

 

How I yoga for ME/CFS

Lovely inspirational thoughts on how Yoga provided support for M.E

my journey thru M.E.

Philadelphia Skyline. Photo by Jess B. Philadelphia Skyline. Photo by Jess B.

By the time you read this, I should, all being well, be in Philadelphia with my sister! You can read all about my excitement, wariness and preparation, and a bit more excitement in my post Philly here we come!

As I suspect my ME / CFS addled body may not like the 8 hour flight and the 4 hour time difference, I plan (or rather I’ve been ordered by my GP and my mum…) to spend the first few (at least) days horizontal on my sister’s sofa or asleep in her bed (yep I’m kicking my sis out of her own room and onto her futon…sorry Lou). I’m not sure my mum is even going to let me make myself a cup of tea never mind use the laptop to blog! But hey, it’s better to be safe than sorry.

I really don’t know how my…

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Foggy Frog and the Pain Gang – Making the invisible visible by Megan Schartner » Foggy Frog and the Pain Gang Launch Party — Kickstarter

I don’t usually reblog, but when I do…it’s for something awesome.

Liveken - my chronic life journey

Please check out my update on the Foggy Frog Kickstarter page.

I have provided photos from yesterday’s launch.

Foggy Frog and the Pain Gang – Making the invisible visible by Megan Schartner » Foggy Frog and the Pain Gang Launch Party — Kickstarter.

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The Lonely Goblin

There is no time like Halloween for feeling home sick. It’s when us naive Canadians (and Americans, I assume) realize that Halloween is not the anticipated, drink and chocolate filled event of our homeland to the rest of the world. One could spend weeks thinking of the best costume idea she ever had only to not have a single party to attend. Part of me is relieved, it has been a stressful couple months, combined with just getting over a cold and having a busy few weeks ahead; I should really be taking some time to rest and get back into my yoga practice. But the other part of me is still searching for a laid back halloween party to strut my punny costume at.

Over the years I have become adept at creating ‘easy’ costumes. Perhaps it is because of CFS, perhaps it is because I am not the most creatively inclined, or don’t want to spend much on a costume. Or perhaps I am just downright lazy when it comes to Halloween (despite my love of a good costume party). Yet I have always managed to impress with my silly costume ideas. I won’t share this years just yet as I still have hopes of using it and don’t want to ruin the surprise. But, I will share a few of my previous years costumes to provide some inspiration for anyone who feels a little spark tonight to go out and enjoy the holiday!

1. Blackmail 

I did not look this good doing it

I did not look this good doing it

2. Zombie Celebrity or Historical Figure

Find a celeb you kind of look like, throw on too much eyeliner and some fake blood and hit the streets!

Find a celeb you kind of look like, throw on too much eyeliner and some fake blood and hit the streets!

3. The Freudian Slip 

Puns never fail me

Puns never fail me

4. Hipster 

Everyone hates hipsters. Also, everyone has weird old clothes lying around somewhere in their house. Easy and fun! Even hipsters can appreciate it

Everyone hates hipsters. Also, everyone has weird old clothes lying around somewhere in their house. Easy and fun! Even hipsters can appreciate it

Are you going out for Halloween? Are you a lazy costumer like me? Do you have any suggestions for easy costume ideas?

Happy Halloween!

Open letter to normals

We just have to keep smiling

I found this and thought I would share it with you all… Please note I didn’t write this

Open Letter To Normals

These are the things that I would like you to understand about me before you judge me…

Please understand that being sick doesn’t mean I’m not still a human being. I have to spend most of my day flat on my back in bed and I might not seem like great company, but I’m still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I’d still like to hear you talk about yours too. Please understand the difference between “happy” and “healthy”.

When you’ve got the flu you probably feel miserable with it, but I’ve been sick for years. I can’t be miserable all the time, in fact I work hard at not being miserable…

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I am Part of the WordPress Family and The Versatile Blogger Award

While the Oscars are still months away, it feels like awards season has struck the CFS/Fibro blogging world. It has been very exciting seeing all the different awards and nominations going around to some very inspirational bloggers, and I am happy to accept both the Versatile Blogger Award and the I am Part of the WordPress Family Award!

First of all, I would like to thank Tlohuis for both of the nominations.  She writes an honest and inspirational blog about living with chronic illness that you definitely need to follow!

The Versatile Blogger Award requires that I reveal 7 interesting facts about myself:

1. I was diagnosed with CFS when I was only 13

2. I have traveled to 24 countries

3. I have run a sprint distance triathlon

4. I have a slight problem with Mcdonalds

5. I used to be a competitive swimmer

6. The Harry Potter  books got me through some of my worst CFS moments

7. I have seen the Lord of the Rings movies too many times to count.

Here are my nominees for the Versatile Blogger Award:

Fairy Blogs About ME

Dear Little Disease

Counting My Spoons

Beth Landau

Mariflies Blog

My nominees for the WordPress Family Award are:

My Fibrotastic Life

Dawny Hosking

Notes from the Fog

Fish Out of Water

Sloth and Slothability

Here are the Official rules for each:

Versatile Blogger Award

1. Display the Award on your Blog.
2. Announce your win with a post and thank the Blogger who nominated you.
3. Present 15 deserving Bloggers with the Award.
4. Link your nominees in the post and let them know of their nomination with a comment.
5. Post 7 interesting things about yourself

WordPress Family Award

1. Display the award logo on your blog.
2. Link back to the person who nominated you.
3. Nominate 10 others you see as having an impact on your wordpress experience and family
4. Let your 10 Family members know you have awarded them
5. That is it. Just please pick 10 people that have taken you as a friend, and spread the love.

Thanks for Reading!

versatile-blogger worpress fam

Making Hard Decisions

I had a hard time deciding what to write about this week. I have a stash of tips and ideas that I would like to share with others struggling with Chronic Illness, but I couldn’t write any of those articles. I wrote and scrapped several different drafts, before I realized what I really needed to write about: tough decision making.

I’ve never been a good decision maker. From deciding what I’d like to eat at a restaurant to the Uni I went to, decisions have always come hard to me. As I’ve aged my decision making skills have weaned and waned, sometimes I feel in control and sure of what I want, other times I feel lost in a battle where all sides seem equally good and equally bad.

Living with Chronic Fatigue adds a new element to decision making. Like anyone, you need to consider what you want and what you need, but the disparity between these two is greater for those living with a chronic illness.

I’m at a time in my life where a lot of things are changing. The amount of possibility is both stressful and exciting, but the challenges that lay ahead both; internal and external are daunting. Deciding who we want to be and what we want to come is challenging for every young (and old) person, but CFS demands more attention and snakes its way into every major decision I need to make.

I recently read an article from one of my favourite authors, about reducing small decision making to put your entire focus on the big decisions that need to be made. In theory, this sounds great to me but how do you effectively put that into practice? What if I’m too tired before bed to decide what I want for breakfast tomorrow? What if I enjoy waking up in the morning and putting an outfit together, even though I’m aware that this can sometimes add extra stress? And what about those times when you need to make some big decisions, and thus all decisions including what you’ll order for lunch and what time you’ll go to bed become impossible to make. What do you do when your decision making processes begin to shut down?

tough decisions

Fear lies at the base of all decisions. Fear that you will make the wrong choice, or fear how this will affect your life or somebody else’s. Sometimes,  it’s an utter panic of having no idea what to do. Not knowing is one of our greatest fears.

So the question is:  how can we cultivate self awareness to overcome this fear of indecision, to make a choice that is right for us in the moment while still seeing the future?

I will be spending a month working and writing from the beautiful Scottish Highlands. Getting out of the city and into nature has made my mindfulness challenge easier, despite the physically demanding work I will be doing.

In a month’s time I will need to be deciding where I will be going, what I will be doing, and whom, if anyone, I will be with. CFS has forced me to collect the tools I need to be resilient, adaptable, and self aware. Now I only need to use them to find my own clarity.

What about you? How do you make those tough decisions? And How does your illness effect them?

Photo Credit: One Way Stock via Compfight cc

Welcome: Initial Musings

Welcome to The Better Way; a blog about living with CFS (also known as M.E). I have made some pretty drastic changes in my life over the 11 years since my diagnosis, experiencing hopeful highs and draining lows. While CFS has certainly made my life extremely different than what I had imagined, I have learnt the joys of listening to my body, following my heart, and creating an unconventional lifestyle where I can thrive, not despite of, but because of my CFS.

Over the past three of four years I’ve done things that had seemed unattainable most of my life. I’ve run small businesses, learnt new languages, traveled around the world, completed triathlons, learned to be an extrovert, harnessed the power of introversion, read way too many books, planted a garden, and countless other active activities that have brought me hope and happiness.

Over the next few months, I plan to write about how CFS allowed me to accomplish my goals, and how i am moving forward with my life with CFS as my partner rather than enemy. I’m moving to a new, very big, city with a new boyfriend and a new job, so my coping mechanisms will really be put to the test over the next few months.

I hope you will follow along this journey with me, and leave comments if you have any anecdotes, advice, questions, or interesting thoughts you would like to share!